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Summary

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This bill expands an existing state program that provides financial assistance to help families care for individuals with developmental disabilities at home instead of in a state institution. Previously, this financial subsidy was only available to qualified parents, adoptive parents, or foster parents. The bill changes the program's name and rules so that if a parent is unable to care for the individual, an "appropriate relative," such as a sibling or other approved family member, can receive the financial aid to provide care.
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Analysis

Pros for Progressives

  • Expands the social safety net by allowing extended family members to receive financial support to care for disabled relatives, ensuring continuous care when parents age or are unable to help.
  • Promotes community welfare and deinstitutionalization by keeping individuals with developmental disabilities in loving family homes rather than state institutions, improving their quality of life.
  • Provides crucial financial assistance to working-class relatives who might otherwise struggle to afford the costs associated with full-time caregiving for a family member with disabilities.

Cons for Progressives

  • May be seen as a way for the state to offload its responsibility for comprehensive, state-funded care by relying on underpaid family labor.
  • Does not include provisions for increased financial assistance or specialized medical training for relatives taking on complex caregiving roles.
  • Expanding the pool of eligible caregivers without explicitly expanding the program's overall budget could potentially lead to reduced individual benefits or waiting lists for vulnerable families.

Pros for Conservatives

  • Reinforces traditional family values by encouraging family members, rather than the government, to take responsibility for the care of their disabled relatives.
  • Likely saves taxpayer money in the long run, as paying a family subsidy is generally much less expensive than funding full-time care in a state-run institution.
  • Reduces reliance on state bureaucracies and government-run healthcare facilities by promoting private, home-based care solutions.

Cons for Conservatives

  • Expands eligibility for a government financial assistance program, potentially increasing state spending and the number of people dependent on government welfare.
  • Increases government involvement in private domestic life by requiring state inspection, monitoring, and evaluation of the extended family's home.
  • Creates additional administrative burdens for the state to establish new certification standards and guidelines for non-parent relatives.

Constitutional Concerns

None Likely. The bill simply expands eligibility for an existing state financial assistance program to include appropriate relatives. It does not infringe on constitutional rights such as free speech, due process, or protection from unreasonable searches and seizures.

Impact Overview

Groups Affected

  • Individuals with developmental disabilities
  • Siblings of disabled individuals
  • Extended family members of disabled individuals
  • Parents of disabled individuals
  • Department of Behavioral Healthcare, Developmental Disabilities and Hospitals

Towns Affected

All

Cost to Taxpayers

Amount unknown

Revenue Generated

None

BillBuddy Impact Ratings

Importance

15

Measures population affected and overall level of impact.

Freedom Impact

10

Level of individual freedom impacted by the bill.

Public Services

30

How much the bill is likely to impact one or more public services.

Regulatory

15

Estimated regulatory burden imposed on the subject(s) of the bill.

Clarity of Bill Language

90

How clear the language of the bill is. Higher ambiguity equals a lower score.

Enforcement Provisions

75

Measures enforcement provisions and penalties for non-compliance (if applicable).

Environmental Impact

0

Impact the bill will have on the environment, positive or negative.

Privacy Impact

0

Impact the bill is likely to have on the privacy of individuals.

Bill Status

Current Status

Held
Comm Passed
Floor Passed
Law

History

• 04/17/2026 Introduced, referred to House Finance
• 05/01/2026 Scheduled for hearing and/or consideration (05/05/2026)
• 05/05/2026 Committee recommended measure be held for further study

Bill Text

SECTION 1. Section 40.1-1-10 of the General Laws in Chapter 40.1-1 entitled "Department of Behavioral Healthcare, Developmental Disabilities and Hospitals" is hereby amended to read as follows:
40.1-1-10. Parent deinstitutionalization subsidy aid program Deinstitutionalization subsidy aid program.
(a) There is hereby established within the department of behavioral healthcare, developmental disabilities and hospitals a deinstitutionalization subsidy aid program. The program is founded for the express purpose of providing financial assistance or subsidy aid to the qualified parent applicant, or if the parent is not able to care for the person then an appropriate relative as defined in this chapter, who is found and certified to be qualified by the director of behavioral healthcare, developmental disabilities and hospitals to receive and take into his or her care, custody, and control a person under the legal authority and control of the director of behavioral healthcare, developmental disabilities and hospitals who is and has been a resident or patient of the Dr. Joseph H. Ladd Center, the Dr. U.E. Zambarano Memorial Hospital, at the institute of mental health or the general hospital, or a resident in an out-of-state institution, who would have been eligible for placement in the Dr. Joseph H. Ladd Center, Dr. U.E. Zambarano Memorial Hospital or the institute of mental health or the general hospital for a period of time not less than ninety (90) days, or would be a resident or patient of one of the facilities listed in this section for a period of ninety (90) days or more if a specialized community program were not developed to meet the person’s particular and/or unique needs and meets the eligibility criteria contained in § 40.1-21-4.3.
(b) The general assembly hereby finds that such a parent deinstitutionalization program would promote the general welfare of the citizens of the state and further the purpose of providing deinstitutionalization care, treatment, and training for the institutionalized person and subsidy aid to the qualified parent applicant or an appropriate relative of the institutionalized person. It is further found that the program is established for the purpose of providing subsidy aid to assist and make available non-institutional care, support, and training when it is found to be in the best interests of the health and welfare of the institutionalized person and where that placement may be made and certified by the director of behavioral healthcare, developmental disabilities and hospitals to the qualified parent applicant.
(c) The director of behavioral healthcare, developmental disabilities and hospitals is hereby vested with the authority to promulgate rules and regulations as are deemed necessary and in the public interest to establish and place into operation the parent deinstitutionalization program and authorize the payment of subsidy aid to the qualified parent applicant or an appropriate relative who receives into his or her care, custody, and control a person under the legal authority and control of the director of behavioral healthcare, developmental disabilities and hospitals who is or has been a resident or patient of the Dr. Joseph H. Ladd Center, the Dr. U.E. Zambarano Memorial Hospital, at the institute of mental health or the general hospital or a resident or patient in an out-of-state institution who would have been eligible for placement in the Dr. Joseph H. Ladd Center, Dr. U.E. Zambarano Memorial Hospital, or the institute of mental health, or the general hospital.
(d) Rules and regulations promulgated pursuant to subsection (c) shall include, but not be limited to, the following areas of concern:
(1) The establishment of eligibility and other requirements for the qualification and certification of the parent applicant applying for subsidy aid under this chapter;
(2) The establishment of eligibility and other requirements for the qualification and certification of a person to be removed and placed from the Dr. Joseph H. Ladd Center or Dr. U.E. Zambarano Memorial Hospital, or the institute of mental health or the general hospital, under this program as set forth in this chapter or a resident or patient in an out-of-state institution under this program as set forth in this chapter;
(3) The establishment of such other eligibility, certification, and qualification standards and guidelines for the person or the parent applicant or an appropriate relative to which the program applies as may be deemed reasonable and in the public interest;
(4) The establishment of such licensing, regulating, inspection, monitoring, investigation, LC006336 - Page 2 of 5 and evaluation standards and requirements for the placement, care, support, custody, and training of the person as are deemed reasonable and in the public interest under this chapter;
(5) The periodic inspection, review, and evaluation of the care, support, and treatment afforded the person placed in the home of the qualified parent applicant or an appropriate relative under this program and the making and implementation of such recommendations as are deemed necessary for the continued health, safety, and welfare of the person in accordance with the provisions of this chapter;
(6) The establishment and implementation of such other standards, safeguards, and protections as are deemed necessary and in the public interest to protect the health, safety, and welfare of the person placed under the program or in determining and certifying initial and/or continuing eligibility requirements as the director of the department of behavioral healthcare, developmental disabilities and hospitals shall in his or her discretion deem to be necessary and appropriate, including, specifically, the authority to recall and return the child or adult to the custody and control of the state and the director of behavioral healthcare, developmental disabilities and hospitals into any care or placement program as the director may in his or her discretion order and direct, including therein summary removal from the custody of the qualified parent applicant or an appropriate relative and return to the state institution or out-of-state institution.
(e) For the purpose of this chapter the words “qualified parent applicant” shall mean any natural parent, adoptive parent, or foster parent or both natural parents jointly, both adoptive parents jointly, or a court-appointed guardian or both foster parents jointly, or as defined by rules or regulations established by the department of behavioral healthcare, developmental disabilities and hospitals who may apply for inclusion in the behavioral healthcare, developmental disabilities and hospitals deinstitutionalization subsidy aid program as set forth in this chapter. For the situation where the natural or adoptive parents are divorced or separated, or where one of the parents is deceased, the words “parent” or “parent applicant” shall mean the parent legally having or giving custody to the person who may apply for inclusion in behavioral healthcare, developmental disabilities and hospitals deinstitutionalization subsidy aid program as set forth in this chapter.
(f)(1) For the purpose of this chapter, the words “appropriate relative” shall mean an interested and approved relative of the adult, or adoptive parent(s) or sibling(s) of the adult..
(2) For the purpose of this chapter the words “subsidy aid” shall mean payment or continued payment to a parent applicant pursuant to the rules and regulations established by the director of behavioral healthcare, developmental disabilities and hospitals for deinstitutionalization subsidy aid program as set forth in this chapter.
(g) Alternatives to institutional care. The department of behavioral healthcare, LC006336 - Page 3 of 5 developmental disabilities and hospitals is hereby directed to develop options, fiscal impact analysis, and recommendations for the expansion of shared living services to siblings of individuals with developmental disabilities who are no longer able to be cared for at home by aging parents. The department shall submit these recommendations to the governor, and to the general assembly by December 31, 2013.

SECTION 2. This act shall take effect upon passage.

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